Down Syndrome UK

With you for the journey

Down Syndrome UK is a parent-led charity working hard to challenge outdated stereotypes and raise expectations for individuals with Down syndrome.

About us
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Education programmes free!

DSUK has decided to invest over £100,000 a year to make its flagship education programmes completely free from September. Schools can sign up today!
Find out more

Supporting transitions

Starting school, moving to a new class, or simply getting through a busy school day can be a big deal for all children. We have the resources and advice here to help you make them go really well!
Get help with transitions

Partner with us

Corporate partnerships enable us to deliver practical services, specialist training and national awareness campaigns that create real change.
Download the brochure
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Freya's story

Getting a diagnosis of Down syndrome for our baby whilst pregnant was a shock and we were really unsure of what this meant for our family

Having DSUK put us in touch with parents of older children with Down syndrome really helped us come to terms with our baby’s diagnosis.

Since birth we have been supported by DSUK with online physiotherapy, feeding, early development courses, Makaton, information for nursery and now currently toilet training and preparing for school.

Our confidence in advocating for our daughter has come from the excellent information and support we continue to receive from DSUK.

Support and resources for parents
Join our online community

Starting Primary School

As our children start primary school years, we provide support, training and resources to both parents and professionals.

Through collaboration, advocacy, and sharing best practices, we strive to build a world where diversity is celebrated, barriers are dismantled, and every child’s potential is realised.

Primary School Parents
Primary School Professionals
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Join us for one of our upcoming events

EHCP Support

Various dates 2025
More information

DLA Support

Various dates 2025
More information

Maternity Webinars

Various dates 2025
More information

Individualised Behaviour Support Service for Primary Schools

Various dates 2025
More information
View all events

Read our blog

Child with down syndrome is wearing a school uniform and looking upwards smiling

Education professionals: how to plan for a successful transition

Big transitions such as starting school or moving to a new room in nursery are exciting, but can also feel daunting for children, their families, and the staff supporting them. A smooth transition doesn’t happen by chance, it’s built through clear communication, shared expectations, and plenty of time for everyone to get to know one another. With thoughtful planning, we can help children and staff feel secure, confident, and ready for what comes next.

Read more
View all blogs
a close up of 3 pairs of feet wearing dsuk socks. the feet are pointing towards each other in a circle, you can see two adult feet and one pair of children's feet
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We've launched our new socks!

Discover our range of gifts that make a difference – from soft, colourful socks and empowering clothing that help raise awareness of Down syndrome, to beautiful Christmas cards and festive gifts designed by talented artists with Down syndrome. Every purchase supports Down Syndrome UK and helps us continue our vital work for children, families, and schools across the UK.

Shop here

Maternity Resources

It is important when discussing antenatal screening tests and results, that language used is respectful and accurate.  Language is powerful and the first time parents hear the news of a diagnosis will stay with them forever.

We are delighted to provide resources and training to maternity units to ensure expectant and new parents have access to contemporary information about the reality of having a child with Down syndrome.

If you are a health care professional and would like to display/offer our resources, please get in touch.

Find out more
Order Maternity Pack
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What our families say

DSUK Parent

I've been supported by DSUK since my daughter was first born. They've been our rock and I put her incredible speech down to PEGS - their Early Development course.

DSUK Parent

The Great Expectations group gave us hope and reassurance in a tough time. I thank Positive about Down syndrome for all of their continued support.

DSUK Parent

A big thank you for all the seminars, resources, advice and support we've received so far which have made a massive difference to our family. Looking forward to having DSUK by our side for the next stages of our journey!